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Comment on: Last Resort

Posted in aine on Jun 27, 2007

Thank you so much for replying. I have already explored the programs you listed. The nearest Hill-Burton obligated facility is about 450 away.(http://www.hrsa.gov/hill burton /) The BPHC clinics in this area only offer primary care through a GP and ob/gyn services. I was approved for women's health services. The ob/gyn referred me to the GP, who then referred me to a neurologist. Every neurologist in this area requires payment up front for the office fee and any tests that may be ordered.(http://ask.hrsa.gov/p c/) DHHS in Texas only provides assistance to children under 19, pregnant women, adults over 65 and people with certain verified disabilities.(http://www.genom e.gov/11008842#assistance) Right now, being able to afford prescription medicine isn't an issue (yet), but I'll hang on to those sites for future reference.(http://www.Rxhope.c om and http://www.helpingpatient s.org) The patient advocate resources for Texas only lead back to the programs I've already looked into.(http://www.patientadvoca te.org) Trying to find help in Texas is akin to a dog chasing it's tail. My GP and I have a fairly good idea of what's wrong, but he can't order the necessary tests through the clinic. They just don't have the resources to provide anything other then primary care and minor illnesses. I have been to the ER twice due to severe exacerbation of my illness. Both times, as soon as they determined that death wasn't imminent, they told me to make an appointment with a neurologist for follow up treatment and sent me on my way. I'm at a loss as to where else to turn. Basically, I feels like I am just waiting to die, I don't know what else to do. At this point, I'm desperately grasping at straws. I'm barely working, I've got $7.34 in the bank, no money coming in for at least a month and I have an ex-husband that is very skilled at avoiding his child support obligation. I'm also very angry. I've never asked for help before. I have always worked hard, paid my taxes and have taken care of myself and my children all on my own. The government has always been more then happy to take my hard earned money, but when I need help, there's none to be found. Whoever said you can't put a price on human life must have had really good health insurance.

Last Resort

Posted in aine on Jun 27, 2007

This site is my last resort. I'm a divorced mother of 2 and my life is rapidly unraveling. I am suffering with an, as of yet, unknown neurological disorder. It's unknown due to the fact that I can't afford to "purchase" a diagnosis. The symptoms forced me to resign from a career I loved a couple of years ago because I was no longer able to do my job effectively on a day-to-day basis. Since then, I have been doing as much freelance work as I'm physically capable of doing. The past few months, my condition has been rapidly deteriorated, so it's getting harder and harder to work at all.

I have been trying to find help for months, but every avenue I have explored turns into a dead end. The state I reside in (Texas) has notoriously awful assistance programs. The available medical assistance programs are geared towards children, adults over 65 and the disabled. To qualify for any type of disability assistance because I haven't been "officially diagnosed" by a qualified specialist. I can't afford the $300, that must be paid up front, to see a neurologist, much less the THOUSANDS of dollars it will cost for proper testing (CT, MRI, etc.), that it would take to get a diagnosis.

A few of the health problems I deal with daily are muscle pain, numbness in my limbs, tremors, dizziness, vision problems and severe migraines. To make matters worse, the heat and humidity here in Texas exacerbate these symptoms.

I have explored every government assistance programs and every charity in the area to no avail. I don't expect to receive any type of direct financial assistance from anyone one this site. Anyone can post a sob story on the Internet and I know I would be very reluctant to help based solely on something I read online. All I am asking is for someone to point me in the right direction or suggest other avenues for me to explore.

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